FOI2025/00361: Community/Patient Public Involvement on Research Board
Case reference FOI2025/00361
Received 31 March 2025
Published 1 May 2025
Request
Request received: 31 March 2025
I am conducting an FOI-based study to explore the current state of community and/or patient public involvement and engagement (PPIE) within high-level agenda setting research boards in organisations funding health research in the UK. May I please ask for the following information under the FOI act regarding both Research England and UK Research and Innovation.
1. Does your organisation have an executive board where health research funding strategy is set?
2. If yes, is there a PPIE (patient public involvement engagement) representative on this board with the specific remit to provide insights into research agenda setting from the perspective of a patient with lived experience of health issues or as a member of the public/community? [I am not referring to the presence of a lay chair].
3. Is there a PPIE advisory structure (e.g. board, committee, panel) which provides PPIE insights to inform the work of the executive board? (not within individual funding calls- I refer to high level feedback into your research strategy meetings) Yes/no.
4. Concerning health research, is there a PPIE representative on any lower-level board (e.g. individual funding calls).
5. If yes to question 2, 3 or 4, please provide a list of members of the board and/or PPIE advisory structure with designated roles/remits (not names).
6. Are PPIE representatives remunerated?
7. Do you require PPIE representatives to do any training? If yes, please specify
8. I realise that some of this information may already be available. However, I was unable to locate it. So, if it is, please provide me with a link to the data.
Response
Response sent: 01 May 2025
Full details of this response are provided in the attached document
Documents
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